There’s no place like home.
Dang. Said it three times and it still didn’t work. I’m still sitting here, at my impromptu desk on third floor of the hospital. I remember not-so-long ago when this seemed like home. But it’s been a long time since then, almost two years, I think.
For those new to the blog, my youngest son (he’s referred to as “George” on here) has a metabolic disorder. It’s called ornithine transcarbamylase deficiency, and if you want to read up about it, and George, knock yourself out. There’s a whole tab up on the top there. (And yes, spell check, I have spelled it right. Trust me.)
George’s condition makes him more susceptible to illness. But we have had a long run of good luck, and his immune system has bounced back amazingly. We haven’t had to deal with a hospital-stay-inducing illness in quite some time.
That was, until about midnight last night.
It started with a cough, followed by a sound that would wake the most sound sleeper from the deepest of sleeps…the sound of a child projectile vomiting down a flight of stairs.

George after getting settled in for what was supposed to be a simple bolus of fluids. Someday I’ll learn. 😉
Needless to say, my night was short, and I ended up bringing George down to his pediatrician after the other boys got on the bus. We stopped up at the hospital for a round of fluids, and were about to disconnect the IV to head home when I noticed a change.
George’s cheeks were flush, he was no longer talking or playing and he started to get “that” look. He was now running a fever.

When he gives me this face, he could ask for the world and I would readily give it to him. (As if I wouldn’t anyway.)
I was given the option to stick around for the evening, or take him home and see how the night went. I thought about it for a few minutes, and then when George asked to go to the bathroom, he had a dizzy spell coming back to bed. My mind was decided for me, we were sticking it out.
And so, here I am, after midnight. I’ve been awake about 24 hours, give or take a few minutes here or there…and yet, I cannot sleep. I watch him like a hawk, listen for his IV pump, hold my breath when he coughs, all those things that a parent does for their child.
Yet, as tired as I am, I know one thing: I am blessed.
And that’s all I need to know.
I’ll update in the morning about George’s progress and our (hopeful) discharge home. Fingers crossed for a peaceful night…well, what’s left of it.
3:46 p.m. – Heading home! YAY!
Praying for you and your little guy. Hospital stays are so hard on everyone. We have not had to deal with what you have, but our son has a Periodic Fever Syndrome called PFAPA…and seeing the little one that you love and want to fix everything thing for go through something that you can’t fix is horrible. Prayers and hugs.
Will keep Eli in our prayers.
Bless your hearts! Sending up a prayer for you all. There is no feeling like the one when your child is sick, and your options are to just wait it out. Stuck in the throws of harvest here, but we see a glimmer of light at the end of the tunnel. Praying the weather holds. Praying for you more!
Those poor little red cheeks! I remember those days. Your son is in my prayers. I hope you were able to get some rest last night.
I know you really need to see happy George soon…. so do I!
God Bless your little son and you too! Praying for you both! ♥
Prayers for you, George and your family. Will be thinking of you!
Praying for you guys. Love and hugs.
Real prayers and virtual hugs – on their way.
Prayers sent your way for George and a special blessing for his mama….
Our thoughts and prayers are with you both.
Love you Val and Georgie. 🙂
Nothing worse than a sick child!!! I’m praying for a fast recovery. Good luck, mom!
I am praying for you guys, I hope little man gets better soon! You all deserve to be healthy and happy.