There’s no place like home…there’s no place like home

There’s no place like home.

Dang. Said it three times and it still didn’t work. I’m still sitting here, at my impromptu desk on third floor of the hospital. I remember not-so-long ago when this seemed like home. But it’s been a long time since then, almost two years, I think.

For those new to the blog, my youngest son (he’s referred to as “George” on here) has a metabolic disorder. It’s called ornithine transcarbamylase deficiency, and if you want to read up about it, and George, knock yourself out. There’s a whole tab up on the top there. (And yes, spell check, I have spelled it right. Trust me.)

George’s condition makes him more susceptible to illness. But we have had a long run of good luck, and his immune system has bounced back amazingly. We haven’t had to deal with a hospital-stay-inducing illness in quite some time.

That was, until about midnight last night.

It started with a cough, followed by a sound that would wake the most sound sleeper from the deepest of sleeps…the sound of a child projectile vomiting down a flight of stairs.

George after getting settled in for what was supposed to be a simple bolus of fluids. Someday I'll learn. ;)

George after getting settled in for what was supposed to be a simple bolus of fluids. Someday I’ll learn. 😉

Needless to say, my night was short, and I ended up bringing George down to his pediatrician after the other boys got on the bus. We stopped up at the hospital for a round of fluids, and were about to disconnect the IV to head home when I noticed a change.

George’s cheeks were flush, he was no longer talking or playing and he started to get “that” look. He was now running a fever.

When he gives me this face, he could ask for the world and I would readily give it to him. (As if I wouldn't anyway.)

When he gives me this face, he could ask for the world and I would readily give it to him. (As if I wouldn’t anyway.)

I was given the option to stick around for the evening, or take him home and see how the night went. I thought about it for a few minutes, and then when George asked to go to the bathroom, he had a dizzy spell coming back to bed. My mind was decided for me, we were sticking it out.

And so, here I am, after midnight. I’ve been awake about 24 hours, give or take a few minutes here or there…and yet, I cannot sleep. I watch him like a hawk, listen for his IV pump, hold my breath when he coughs, all those things that a parent does for their child.

Yet, as tired as I am, I know one thing: I am blessed.

And that’s all I need to know.

This is the George that I can't wait to get back.

This is the George that I can’t wait to get back.

I’ll update in the morning about George’s progress and our (hopeful) discharge home. Fingers crossed for a peaceful night…well, what’s left of it.

3:46 p.m. – Heading home! YAY!

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14 thoughts on “There’s no place like home…there’s no place like home

  1. Praying for you and your little guy. Hospital stays are so hard on everyone. We have not had to deal with what you have, but our son has a Periodic Fever Syndrome called PFAPA…and seeing the little one that you love and want to fix everything thing for go through something that you can’t fix is horrible. Prayers and hugs.

  2. Bless your hearts! Sending up a prayer for you all. There is no feeling like the one when your child is sick, and your options are to just wait it out. Stuck in the throws of harvest here, but we see a glimmer of light at the end of the tunnel. Praying the weather holds. Praying for you more!

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