I had to make a quick, mid-appointment update to bring some really great news…George no longer needs to have growth-hormone shots!
Now, this may only be temporary, we will have to come back in 4 months and double-check on things, but I’m certain that things will continue to go on the right track. Sadly, our visits with Dr. Lteif (endocrinologist), may become fewer and farther between…but that’s only sad because she’s such an excellent physician, and thinks pretty highly of our little man.
Up next, we see the neurologist, who will become the lead doctor in George’s care. Dr. Renaud is a pretty great doctor, too.
So, as long as everything goes as planned, we’ll be on the road heading north shortly after lunch. And for once, I’m leaving Mayo feeling as if we’ve finally turned a corner, not just headed further into the abyss. What a great feeling that is! (And for those new to my blog, George is suspected to have Ornithine Transcarbamylase Deficiency, a disorder that doesn’t allow him to break down protein…which means he won’t be enjoying full servings of meat, dairy, etc., for most of his life.)
Yesterday, when they drew his blood, I saw on the paperwork that his tests were heading to Baylor for the genetic testing. George hasn’t travelled much in his almost-2 years, but his blood certainly has!
Ag Book of the Day 13:
“What Do I Make? (Let’s Find Out!)” by Dale Simpson. A great board book, with turning wheel, where you can match up the animal with their gift to us! Great for the little guys! Include milk from cows, honey from bees, clothes from sheep, etc. And with the cute cow-shape of the book, and great illustrations, it keeps the little ones interested in the book!